FOR FAMILIES IN THE MIDDLE OF IT

When loneliness is behind the calls

A loved one with dementia who calls over and over is usually not only forgetting the last call. Very often they are lonely: reaching for a familiar voice in a day that feels empty or frightening. Answering the loneliness, not just the question, is what settles them.

This page comes from our founder’s years of answering her mother’s calls, plus published research. It is not medical advice.

What the research shows

In the IDEAL study in the UK, about a third of people living with mild to moderate dementia at home reported moderate loneliness. Living alone and depression were linked to feeling lonelier. The same research found that almost two thirds of family carers felt lonely too, about twice the rate among older people in general (Victor and colleagues, Aging & Mental Health, 2020).

So when the phone rings again, there may be two lonely people on the line.

Signs loneliness is part of the calls

Pain, infection, poor sleep, or a medication change can also make a parent call far more than usual. A sudden change is worth telling their doctor about.

What helps the loneliness

Your loneliness counts too

Answering the same call dozens of times a day is isolating work, and most of it happens where nobody sees it. Tell one person what is going on. Look for a caregiver support group, in person or online. The Alzheimer’s Association’s 24/7 Helpline at 800-272-3900 is there for caregivers, not only for the person with dementia. And see caregiver burnout from constant phone calls.

When the calls are constant

If your parent is calling over and over through the day, start with a plan for a parent calling constantly, calls at night, and separation anxiety, which often travels with loneliness. If it is your dad, or a parent in memory care, see a dad who keeps calling and calls from memory care.

Where Everline fits

Everline is for the calls you cannot pick up. It answers your loved one in your own recorded voice, as warm on the thirtieth call as the first, talks about the people and memories you taught it, and never promises a visit you have not planned. It is company in between, not a replacement for people: you still read every conversation, and the visits and calls that matter are still yours. Plans start at $79 a month.

Questions families ask

Is my parent with dementia calling over and over because they are lonely?

Often, at least in part. Forgetting the last call is one reason the calls repeat, but many calls are about a feeling: wanting to hear a familiar voice, to know someone is there, to not be alone in a quiet house. If the calls cluster when the house is empty, after visitors leave, or in the evening, loneliness is likely part of it.

How common is loneliness in dementia?

In the IDEAL study in the UK, about a third of people living with mild to moderate dementia in the community reported moderate loneliness, and living alone and depression were linked to feeling lonelier. Almost two thirds of family carers reported loneliness, compared with about a third of older people in general (Victor and colleagues, Aging & Mental Health, 2020).

Will more visits stop the calls?

More company usually helps, but it rarely stops the calls completely, because memory loss means they may not remember the visit an hour later. Predictable contact works better than occasional long visits: the same call time each day, a few familiar faces through the week, and something to look forward to.

I feel lonely too. Is that normal?

Yes. In the same study, almost two thirds of family carers reported loneliness, and lonelier carers tended to have smaller social circles and more caregiving stress. Telling one friend what is going on, joining a caregiver support group, or calling the Alzheimer's Association's 24/7 Helpline at 800-272-3900 are real places to start.

How Everline works

Same question, again and again? Read repeating the same question.